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Bendy Bodies: Ehlers-Danlos Syndrome Unmasked
Recorded for 2025 National Conference
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Category: 2025 National Conference, Cardiovascular, Cert Exam Domain - Diagnosis, Cert Exam Domain - Planning, Detailed Assessment & Documentation, Family, Genetics/Genomics, Integrative Health, Outpatient, Primary Care, Recent Additions (show less)
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Activity Duration| Content Expires: | July 15, 2026 (11:55 p.m. CT)
CE for this activity will not be available after this date. |
This CE activity was recorded for the 2025 AANP National Conference.  | This activity includes closed captioning. |
| Delivery Note: The content for this activity was previously presented during the 2025 AANP National Conference. If you already completed the content of this activity while attending the live or virtual conference, you should not complete this content a second time. Learners should only complete ONE delivery-method to earn credit. Completing multiple delivery options for the same activity is considered duplicate credit for the same content and will not be accepted by regulatory bodies. |
Overview
Ehlers-Danlos syndromes (EDS) are a heterogeneous group of inheritable connective tissue disorders characterized by skin hyperextensibility, joint hypermobility and cutaneous fragility with delayed wound healing. Of the 13 subtypes of Ehlers-Danlos Syndromes identified in the 2017 international classification of Eds, 12 have a recognized, associated genetic mutation. However, hypermobility EDS (hEDS) currently has no identifiable gene. Therefore, patients with hEDS are identified through clinical diagnosis guidelines and criteria. Ehlers-Danlos Syndrome remains a mystery to even specialty clinicians, so much of this lecture will focus on the diagnostic criteria and overview of hEDS symptoms, comorbidities, current treatment options, and the clinical criteria currently guiding the standard of care. Early diagnosis of hEDS is of utmost importance to optimize the symptomatic management of patients and to prevent avoidable complications. Optimally patients should be treated and monitored by multidisciplinary teams in specialized centers. However, the reality is that much of the preliminary diagnosis and treatment will begin in primary care.
Objectives
- Define the diagnosis of Ehlers-Danlos Syndrome(s).
- State the main differences in the new 2017 diagnostic criteria.
- Identify three effective treatment strategies for pain associated with Hypermobility Ehlers-Danlos Syndrome (hEDS), including use of pharmacotherapies.
Speaker
Theresa Mallick-Searle, MS, PMGT-BC, ANP-BC, FAANP
Disclosure
This program was planned in accordance with AANP CE Standards and Policies.
The speaker has the following disclosures:- I am a speaker for AbbVie for migraine, Pfizer for migraine, Averitas for painful diabetic peripheral neuropathy.
All relevant financial relationships have been mitigated.
DisclaimerIndividuals who have contributed to the CE Center (content originally from the 2025 AANP National Conference) were carefully selected for their knowledge and experience in the subject area under review. This presentation is informational only and may contain opinions of the authors from their personal experience that do not necessarily express the opinions of the American Association of Nurse Practitioners (AANP). The activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings. Clinical practice is a constantly changing process and new information becomes available every day. Neither AANP nor the contributing individuals can warrant that the material will continue to be accurate, nor do they warrant that the material is completely free of errors upon publication. Attendees and participants should appraise the information presented critically and are encouraged to consult appropriate resources for any product or device mentioned in this program.
CE Credit Instructions
- Read this activity description, including objectives and disclosures.
- Complete all educational content:
- OnDemand Presentations: Click the Play button to watch the activity video lecture. To get full credit for the learning activity portion, you must watch all of the video content.
- Click on the Additional Resources button to review all additional materials provided (handouts and any other downloadable resources).
- After completing all educational content, go to the Next Steps button:
- Submit the activity evaluation to receive full AANP CE/Rx credit.
- Click on the Get Certificate button. At the top of the certificate screen, use the provided dropdown menu and select AANP Certificate of Completion.
- A copy of your certificate of completion will display on the screen for you to print or save. A copy of the certificate will also be emailed to you.
- A copy of the certificate will be automatically added to your AANP CE Tracker.
Additional Information
For questions or more information concerning this online CE activity, please visit the AANP Help Center to find answers to frequently asked questions and request assistance.
0.85 Contact Hour(s) of CE,
0.43 of which may be applied towards Pharmacology
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